Joint hypermobility and related disorders :
studies in emotion, cognition and behavior.
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TEAM
Coordinateurs
Carolina BAEZA-VELASCO
Founder and scientific head of the HAPAECC research programme. Clinical psychologist. PhD in Psychology. Associate Professor of Psychopathology at Paris Cité University and member of the Laboratory of Psychopathology and Health Processes (LPPS UR 4057).
Researcher at the Department of Psychiatric Emergencies and Post-emergencies of the University Hospital of Montpellier. Team ‘Environment, Biomarkers, Neuropsychiatry’, Institute of Functional Genomics (IGF).
Member of the International Consortium on Ehlers-Danlos syndromes (psychology/psychiatry group).
Sonia LORENTE
Coordinator of the HAPAECC programme and team in Spain. Paediatric nurse. Psychologist, PhD in Health Psychology at the Autonomous University of Barcelona (UAB).
Master’s in applied psychology in Health Sciences and Master in Research Designs and Analysisin Health Sciences (UAB).
Lecturer in the Department of Psychobiology and Methodology in Health Sciences (UAB) and collaborating researcher at the Body Image Assessment and Intervention Unit (UAIC).
Collaborators
David ATTALI
Neuropsychologist trained in cognitive-behavioural therapy and motivational interviewing. PhD in Psychology (Thesis : ACTI-SEDh study)
He works in a chronic pain structure in the urban polyclinic V, Avignon, France.
Karelle BENISTAN
Physician, specialising in medical genetics, pain and orthopaedic medicine. Coordinator of the national reference centre for non-vascular Ehlers-Danlos syndromes, Raymond Poincaré Hospital, AP-HP (France).
Member of the International Consortium on Ehlers-Danlos syndromes and Hypermobility Spectrum Disorders (classic SED group).
Antonio BULBENA
Psychiatrist. Professor and Director of the Department of Psychiatry and Legal Medicine at the Autonomous University of Barcelona.Director of Research at the Institute of Neuropsychiatry and Drug Dependency at the Hospital del Mar in Barcelona.
Member of the International Consortium on Ehlers-Danlos Syndromes (psychiatry/psychology group).
Philippe COURTET
Psychiatrist. Professor of Psychiatry at the University of Montpellier.Head of the psychiatric emergency and post-emergency service of the University Hospital of Montpellier.
Head of the ‘Environment, Biomarkers, Neuropsychiatry’ team at the Institute of Functional Genomics.Chair-manin suicide prevention at the Fundamental Foundation.
Paola ESPINOZA GUZMAN
Clinical psychologist. PhD in Psychology. Specialist in eating disorders. She works in the day hospital for children, adolescents and adults at the Sagrat Cor Hospital in Barcelona and in private practice.
Coordinator of the Body Image Assessment and Intervention Unit (UAIC), Universitat Autònoma de Barcelona.
Léonor FASSE
PhD in Psychology. Associate Professor of Psychopathology, Paris Cité University.
Researcher at the Psychopathology and Health Processes Laboratory (LPPS, UR 4057).
Clinical psychologist at the Interdisciplinary Department of Patient Care, Gustave Roussy Hospital, Villejuif, France.
Cécile FLAHAULT
PhD in Psychology. Associate Professor of Psychopathology at the Université Paris Cité and member of the Laboratory of Psychopathology and Health Processes (LPPS UR 4057).
Clinical psychologist and researcher in the department of adult and elderly psychiatry at the Corentin Celton Hospital, Paris, France.
Jelena FORGET
Clinical health psychologist. Practising at the Fondation Œuvre de la Croix Saint-Simon (Health Centre -Home Hospitalisation), France.
PhD student at the Laboratory of Psychopathology and Health Processes (LPPS UR 4057), Paris Cité University. Thesis: RISEDh st
Sébastien GUILLAUME
Psychiatrist. Professor of psychiatry at the University of Montpellier.Head of the medical team for eating disorders at the University Hospital of Montpellier.
Researcher at the Institute of Functional Genomics (IGF), ‘Environment, Biomarkers, Neuropsychiatry’ team.
Roland JAUSSAUD
Internal medicine physician. Professor of Internal Medicine at the University of Lorraine, France.
Coordinator of the Centre of Competence for non-vascular Ehlers-Danlos Syndromes, Department of Internal Medicine and Clinical Immunology, University Hospital of Nancy, France.
François JEDRYKA
Physician at the pain assessment and treatment centre of the University Hospital of Nîmes, France.
Researcher at the INSERM Sensation Team, Institut de Neurosciences de Montpellier.
Xavier JEUNEMAITRE
Medical geneticist. Professor of Genetics, Paris Cité University.Head of UF ‘Kidney, Heart, Vessels, Epithelia’, Department of Genomic Medicine, Georges-Pompidou European Hospital, AP-HP, Paris.
Co-director of the research team ‘Genetics for understanding the pathophysiology of arterial diseases’, INSERM U970 PARCC.
Member of the International Consortium on Ehlers-Danlos syndromes and Hypermobility Spectrum Disorders (vascular SED group.
Guillaume JONDEAU
Cardiologist. Professor of Cardiology, Paris Cité University.Head of the national reference centre for Marfan syndrome and related diseases, Xavier Bichat-Claude Bernard Hospital, AP-HP. Paris.
Head of the ‘Structural cardiovascular diseases’ research team, Translational Vascular Research Laboratory (INSERM-UMRS 1148)
Larissa KALISCH
Psychologist. MA in Applied Positive Psychology (Anglia Ruskin University, UK). Graduate of the Interuniversity programme ‘Genetic illnesses -transdisciplinary approaches’ (University of Paris).
Trained in Wingwave Coaching®.Trainer and teacher on the Master’s Degree in Clinical Health Psychologyat the University of Paris Cité, on the university diploma ‘Introduction to Positive Psychology’ at the Pierre Janet Centre of the University of Lorraine and at the Positran and Orionsanté training centres.
Researcher associate at the Laboratory of Psychopathology and Health Processes (LPPS UR 4057), Paris Cité Univer
Tristan MIRAULT
Internist and vascular physician. Professor of Vascular Medicine, Paris Cité University.
Coordinator of the Reference Centre for Rare Diseases, Georges-Pompidou European Hospital, AP-HP, Paris.Researcher INSERM U970, PARCC, Team 5 ‘Innate and Adaptive Immunity in Vascular Diseases’
Marisol MORA GIRAL
PhD in Psychology. Lecturer in Psychological Treatments in Adulthood in the Department of Clinical and Health Psychology.
Director of the Body Image Assessment and Intervention Unit (UAIC) of the Department of Psychology and Speech Therapy of the Faculty of Psychology of the Universitat Autònoma de Barcelona.
Elisabet TASA VINYALS
Psychiatrist and clinical health psychologist. She works at the Department of Child and Adolescent Psychiatry and Psychology, Institut Clínic de Neurociències (ICN), Hospital Clínic de Barcelona.
Researcher at the Department of Medicine, Institute of Neurosciences, University of Barcelona.Master in Gender Studies, Intersectionality and Change (University of Linköping, Sweden) and in Clinical Research Applied to Health Sciences.
Caroline VARAY
PhD in Psychology. Post-doctoral fellow at the LPPS laboratory, HAPAECC research programme (APSAOR project) since 2025.
Clinical psychologist at the ‘Œuvre de laCroix Saint-Simon’ Foundation (home hospitalisation).